Extraordinary lives: advancing change in rare diseases (Part 1)

Exceptional Illness Working day is all about increasing awareness and creating improve for the 300 million folks all over the world living with a uncommon disorder. The global rare sickness local community and its supporters occur together on this working day to connect with for much more equitable entry to social chance, cure and support for folks living with a exceptional disorder, their households and carers.

In assistance of Uncommon Condition Working day, we’re extending the discussion further than the day by itself with a two-part panel dialogue that draws on experiences from different views like pharma, study, patients and their households, and health care experts working in just the unusual disease industry.

Today marks the launch of part 1 of our panel dialogue, concentrating on the developments designed since the inception of Unusual Disease Working day, the use and impression of social media, and what more can be performed to assist raise recognition, understanding and understanding of uncommon illnesses for absolutely everyone.

You can be part of in the dialogue by heading more than to our LinkedIn page or Instagram now:

If you’d like to know far more about the operate we do in exceptional disorders or would like advice on any health care communication worries make sure you get in touch with Clare Reynolds on LinkedIn or by e-mail: [email protected]

About Lucid Team

Launched in 2007, Lucid Team is a global multi-capability health care consultancy with core expertise in clinical tactic, healthcare communications, artistic and model tactic, motion, digital and technological know-how, behaviour alter, metrics, and details analytics.  We lover with the pharma and biotech sector, delivering life-transforming value with connected capabilities to create pioneering methods that change behaviour, increase clinical practice and advance wellness outcomes.  Reworking life. Normally.